Panel 1  

Emerging Platforms for Person-Centered, Community-Wide Care Coordination: Needs, Challenges, and Solutions

Katherine K. Kim, PhD, MPH, MBA, University of California Davis, Sacramento, CA
Charles Boicey, MS, RN-BC, CPHIMS, State University of New York Stony Brook, Stony Brook, NY
Janet Freeman-Daily, Seattle, WA
Susan Hull, MSN, RN, Wellspring Consulting, Healdsburg, CA
Anna McCollister-Slipp, Washington, D.C.

As the population ages and the burden of disease increases, there is great need for community-wide care coordination (CWCC) to help deliver triple aims of improved quality, population health and cost. This is particularly critical for underserved patients such as those in rural and low-income communities who experience health disparities. The complexity of coordinating across multiple institutions, care teams, and community services while maintaining a sharp focus on person-centeredness necessitates robust and adaptive technologies. Such systems are foundational for accountable care organizations and health home models. There is little known about technology platforms to accomplish this goal. An initial review of 20 commercially available systems marketed as fulfilling care coordination and patient engagement were assessed on 24 criteria. Most systems were lacking features for patient engagement and collaboration across multiple organizations. A diverse panel of patients, researchers, clinicians, and designers will consider and debate the needs and challenges of person-centered CWCC as well as promising technology solutions.

Panel 2

Empowering and Engaging Patients and Caregivers: Community-Based Participatory Research in Biomedical Informatics

Suzanne Bakken, PhD, RN, Columbia University, New York, NY
Katie Siek, PhD, Indiana University, Bloomington, IN
Tiffany Veinot, PhD, University of Michigan, Ann Arbor, MI

Kim M. Unertl, PhD, Vanderbilt University School of Medicine, Nashville, TN

Multiple presenters at the 2013 AMIA Annual Symposium and Workshop on Interactive Systems in Healthcare (WISH) laid down the gauntlet: the healthcare system must do a better job of engaging and empowering patients in healthcare. What is the role of health information technology in patient engagement and empowerment? How do we ensure that communities historically underserved by the healthcare system are not left behind by the digital healthcare revolution? The proposed panel explores the potential of Community-Based Participatory Research (CBPR) to assist with meeting patient engagement and empowerment goals. CBPR embodies several general principles, including: development of partnerships between community members and researchers, shifting the balance of power towards people previously viewed only as objects of research, and ensuring that research benefits underserved communities. Communities and researchers have used CBPR for over 50 years in a variety of fields, but it has seen only limited diffusion in biomedical informatics and human-computer interaction (HCI). The panel brings together experts in the application of CBPR to biomedical informatics and HCI. Panelists will provide an overview of CBPR and discuss specific projects applying CPBR principles, providing insight into potential contributions of CBPR to patient/consumer empowerment and health disparity reduction.

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